
I am so happy to announce that Brianna Skye and Nathan James arrived on March 4, 2009. Bri was born at 7:58am, weighed 6lbs 1oz and was 18 inches. Nate was born at 8:00am, weighed 6lbs 5oz, and was 19.5 inches.
Brianna was born with a very rare form of Spina Bifida (something we didn't know until birth). Normally this form of SB is devastating (honestly, most babies don't live)...glad we didn't know about it until she was already here! When they started her surgery they also discovered that she had an additional complication called "split cord malformation", but what the nuerosurgeon found was that her spinal cord was fully formed! This combination of defects is literally 1 in 1,000,000.
With all that said, the surgery went very well and Brianna's prognosis is excellent. While I was pregnant, we were told that the chances of Bri needing a wheelchair where very high...after actually seeing the defect, the nuerosurgeon has said that she WILL walk. As you know, doctors will not go out on a limb with a "best case senario" but generally give you worst case so you will be prepared...so to hear him say that she will walk is amazing! There are still many unknowns, but she is moving everything down to and including her toes and she has feeling down to her toes (that was determined through a very yucky test where they use a pin to poke her all over).
Okay, I think that's it. Nathan and the rest of us are doing great, just exhausted from all of the driving! I'll try to be better about updating! Thank you for all of your thoughts and prayers!
Brianna was born with a very rare form of Spina Bifida (something we didn't know until birth). Normally this form of SB is devastating (honestly, most babies don't live)...glad we didn't know about it until she was already here! When they started her surgery they also discovered that she had an additional complication called "split cord malformation", but what the nuerosurgeon found was that her spinal cord was fully formed! This combination of defects is literally 1 in 1,000,000.
With all that said, the surgery went very well and Brianna's prognosis is excellent. While I was pregnant, we were told that the chances of Bri needing a wheelchair where very high...after actually seeing the defect, the nuerosurgeon has said that she WILL walk. As you know, doctors will not go out on a limb with a "best case senario" but generally give you worst case so you will be prepared...so to hear him say that she will walk is amazing! There are still many unknowns, but she is moving everything down to and including her toes and she has feeling down to her toes (that was determined through a very yucky test where they use a pin to poke her all over).
Okay, I think that's it. Nathan and the rest of us are doing great, just exhausted from all of the driving! I'll try to be better about updating! Thank you for all of your thoughts and prayers!
